On Tuesday, Adalie had her MRI
She was pretty excited by these warmers. Little did she know it was so they could find a good vein to poke!
My sweet baby girl was SO brave!! Here she is showing off her big purple bandage holding her I.V. in place. She went on to tell the nurse, "at least you gave me a purple bandage... cause thats my favorite color!!"
She did relatively well with the sedation. At first she quickly went limp. I thought to myself... "that was easy!" and then she suddenly started punching and kicking!! Crazy!! And then, went limp... again!
Is it just me, or do these photos look very familiar!!!
Since we had a few hours in between the MRI and the hearing assessment clinic, my sweet friend Erin was so good to let us come crash at her place! The picture above is so cute to me! Erin's daughter Quinn kept wanting to take care of Adalie!
Dr. Park, our ENT, told Addie that since she was so brave, she could have a sticker. He then came back and told Addie they were out of stickers, so he took her to get a bear!
After 11 hours at Primary Children's this is what we learned: Adalie's MRI was completely normal!!!! So, because of that, they had us meet with the Genetics specialists. They said they had done some research on Adalie's medical history and had found a genetic syndrome that consisted of 3 things. Malformation of the tear ducts, hearing loss, and kidney malformation. Well... I don't know if many of you know this, but Adalie was born without a tear duct on one side. She is now losing her hearing... so..... that leaves the 3rd bizarro issue! They asked me if anyone in my family had had anything strange with their kidneys. I told them that my dad was born with only one kidney and they both began to nod their heads! So there is a relatively good chance Adalie has this genetic syndrome. I have to take her back to Primary's on the 15th for an ultra sound of her kidneys. If it turns out she does have this syndrome, there really isn't anything they are going to do for her. They will probably just make sure she has routine hearing checks and kidney ultra sounds. You really can't get more bizarre than this!!!
Now, just when you thought you were done hearing about Carson..... Last week, when I was at the pediatricians, (Dr. Jopling) I was discussing Carson's progress. I mentioned to him "so you saw Carson's MRI was normal..." well... Primary's had never sent our Dr. the results! So I called them and had them fax Carson's MRI to him. Then, on Friday, Dr. Jopling called me at work and told me he had now seen the results. He then said to me, "To be completely honest with you Lizz... if he were my son, I would take him up to see a Neurosurgeon." Yes folks, thats right... someone who does surgery on the BRAIN!!!! Give me a break!! I thought my poor baby boy was done with this crap!! Dr. Jopling thinks there is something on the scan that is not right. So, tomorrow we have a trip to the Neurosurgeons back at Primary's!!!!!
Stay tuned...
16 comments:
Holy Beep, Lizz. That is a lot of craziness. You titled it just right. HOPEFULLY nothing too serious, but geez.
We are thinking about you guys!
LIZZ!!! You have to let us know what it is! I am so curious now! You're in my thoughts a prayers. Good luck! Let me know if I can do anything for you!
Lizz I know what you are going though. Alana has been in and out of primary children's hospital sense she was three months old and it sucks! You feel so out of control of the situation. And you have to trust people that you don't know with your child's health. And to have to hold your child down while the poke and prod your child, as she doesn't know why her mom is allowing it to go one. is heart braking. I love you and hope that you get some answers and help with everything. i am having a boy. A c-section on the 9th so i will be out of it for awhile I would love to talk to you and hear how things are going. Hang in there and know that I care and love you.
Hey Lizz, Is there anything that I can do for you? And we should go to lunch, let me know your schedule.
wow...all this is so crazy. I can't believe it has all unfolded at the same time. please let us know if there is anything we can do to help out. we are thinking and praying for you all.
Wow! I can't believe how much you guys have been through. Know that you are in our thoughts and prayers.
Much Love!
Oh my gosh Lizz I cant believe your going through all of this with both your kids. Your such a strong person and woncerful mom and I KNOW you will get through this! Love you lots! PS I emailed kimi your email to add you to her blog!
Oh for heavens sake! Please let me know what I can do for you! Your kids are resilient and they will be fine! They will just need there mom to be sane....so let me know what I can do to help you stay that way! You are amazing! Keep it up!
Hey Lizz, it's Sharon! You are such a trooper with your kids! I can tell you're a great mother. They are both so happy. Good luck with all these tests!
P.S. Adalie's hair is so cute.
Lizz I will definitely keep your sweet family in my prayers. I hope things are working out for them, and I hope they can figure things out for you soon instead of making you keep going back for more and more tests to find nothing.
Liz, I had no idea. I hope that everything is going better after all the craziness you have had in the last couple of months. You are in our thoughts and prayers. Good luck with everything and keep us posted.
Lizz, I had no idea you were dealing with all of this. You are one tough girl and it seems your kids inherited toughness as well. we'll be praying for you. good luck with the ultrasound.
Lizz, so sorry to hear your kids are having problems. It was fun to chat with you at church.
Take care,you are in my prayers
Love,
Barb Jones
Hey Liz! I would love to have your private blog address and invite. How are your kiddos? Email me sometime kimifry21@gmail.com
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